Friday, 24 January 2014

HOLLY FEST CHELTENHAM FEB 15 2014

Hey to any of you living in the Cotswolds please do check out Holly Fest 2014! 

There's a fab line up and it's all in aid of Cure Rett.

The bands are..... 

THE BLOW MONKEYS 
http://www.theblowmonkeys.com/

MILES HUNT (Front man of The Wonderstuff) http://www.thewonderstuff.co.uk/index2.htm

ERICA NOCKALLS
http://www.ericanockalls.com/ 

YOUNG KATO
http://www.youngkato.com/ 

THE TEA STREET BAND
http://www.theguardian.com/uk/the-northerner/2013/jan/07/new-band-up-north-emily-brinnand-liverpool-theteaband 



ROOK AND THE RAVENS

http://www.rookandtheravens.com/


AJ
http://www.ents24.com/festival/hollyfest-2014/3362049 

So what is Rett Syndrome that this is all in aid of?

Rett Syndrome is caused by a random genetic mutation on the x-chromosome that can occur in any boy or girl. It becomes apparent between the age of 6 months and 2 years. Boys usually die within their first year. Girls go through a period of regression where they lose the ability to walk, speak, use their hands, and often to eat properly. Seizures can develop as well as breathing problems, scoliosis (curvature of the spine), gut failure and even premature sudden death.

It usually affects girls from 6 to 24 months leading to devestating loss of developed skills.

  • Results in life-long disability - over half will never walk and develop epilepsy and seizures.
  • In almost all cases girls loose their speech and use of their hands.
  • Is usually caused by a single random (not inherited) genetic mutation.
  • Has been shown in the lab that correcting the faulty gene leads to a cure for Rett Syndrome.


http://www.ents24.com/festival/hollyfest-2014/3362049

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